Long Week!

Well, it's been a busy week! We had a clinic appointment on Monday to check Emery's blood counts. She needed a blood transfusion but we were not surprised. This has become quite routine for us now! Her counts were good enough for me to not have to give her the GCSF shot anymore though! Yay for that! While we were waiting for the blood bank to prepare her blood, I had one of our nurses check the dressing that protects her central line. It looked a little funky to me and they thought she may have a yeast infection on her skin. They changed her dressing and ordered daily dressing changes until it clears up. The home health nurse came on Tuesday to change it and mom and I had to hold Emery down while she screamed the whole time. She has never gotten upset in the past when her dressing has been changed. She gets a little mad when they pull the tape off but usually that's it. She kicked and screamed for about 20 minutes. It was awful. The nurse told us to call our doctor because she was afraid she was going to get a serious infection in her line if it didn't get checked out. So we called Dr. Thompson and he told us to come on in. We had to drive into Houston during rush hour but luckily it didn't take that long. He met us in the lobby and took us up to the clinic even though it was closing. He is such a nice guy...we think so anyway. I think the clinic nurses were a little annoyed with him for bringing us in without an appointment and for not following proper procedure. He didn't want us having to sit in the ER for hours just to get it looked at. Anyway, the nurses got us in the computer and looked at Emery's rash. They redressed it, told us her line looks good - very reassuring. They decided it would be best to have us come back the next day to have it redressed by them instead of the home health nurse. So, we made the drive into Houston again on Wednesday and Thursday for her dressing changes. Our home health nurse came today and Emery did great! She got a little upset a couple times but I think it's because our nurse has a very loud raspy voice. I think she was scared more than anything! Her leg looks much better today and I think it will be cleared up in no time. I am so glad it is getting better. Emery seems to be feeling better as well. She has been all smiles today and has even put up with a little bit of tummy time without too much fuss!

Last night we went to a dinner over at Craig Waibel's house. I'm sure you've read on my mom's blog about how he plays soccer for the Houston Dynamo. He and some of his teammates have started a yearly fundraiser for the cancer center. We, along with some other kids/families, are going to be on the flyers advertising the event in May. It sounds like it will be a lot of fun! People pledge money to volunteers who are going to shave their heads - Dynamo players, dads, teachers, principals, etc. The day of the event, there will be tailgating and head-shaving before the Dynamo game. Everyone who gets their head shaved gets a Waibel Warriors t-shirt and a ticket to the game. I think they are working on also getting Locks of Love involved so that women who want to donate their hair can get their hair cut as well. We are trying to convince David that he needs to shave his in honor of Emery's soon to be bald head...he says babies are supposed to be bald! I don't really want him to have a shaved head but it's for such a good cause! In addition to the pledges, they will be selling t-shirts, hats and bracelets. It will be a lot of fun to go back and see everyone. It sounded like the fundraiser was a huge success last year and they are anticipating this year will be even better.

So, Emery has started to lose some of her hair. I'm not sure if it is from the chemo or normal baby hair loss. Either way, I wanted to get her some cute hats to wear. I looked on Etsy.com the other night and got some of these precious beanies. I hope they fit her itty bitty head! I also got her a flower headband and some owl clips...the clips will have to wait a while!

I got a few of these beanies in different colors. Can't wait to see them on her!

This isn't Emery - it's just a picture of the headband I bought.

I got one owl in pink and one in turquoise. They are adorable! She'll have to grow some hair before we can use them though!

David's sister, Hannah had her baby girl today! Welcome to the world Willow Bentley Morris! We can't wait to meet you!

Tomorrow, my dad and his wife, Marsha are coming to visit for the day. They are staying the night in Dallas with Sarah and Miles and heading our way tomorrow morning. We are looking forward to their visit. I'll be sure to get some pictures and post some tomorrow!

Off to bed! I hope everyone has had a great week!